Showing posts with label fibrofog. Show all posts
Showing posts with label fibrofog. Show all posts

Sunday, 6 July 2014

PROJECT ZERO - SATA REMEMBERING DUE TO FIBROFOG

Remembering things for me is sometimes a problem due to a condition that I suffer from.

I have had this for way over fifteen years and been asking about it for over 13. I found out what this was and even though the NHS have conveniently not 'discovered' it in all this time now that I did they still refuse to give me drugs and treatment for it.

This is called Fibromylagia and it causes a dozen or more areas of pain along with dozens of other things, one is Fibrofog, where I have trouble remembering things.

Now I called this file 'SATA REMEMBERING' as I was having difficulty remembering ... SOMETHING, lol.

Anyway this really hit home that the memory thing was a problem because it was over things I thought I would never forget.

The loss is not permanent it just cant be recollected often why you need it most. You just see fog as you try to remember hence the term 'fibrofog'.

The number one drugs for dealing with the condition that actually deals with the source of the problem is Sodium oxybate which one GP with delusions of grandeur and oinly interested in his own ego and one specialist in Fibromyalgia in Guy's Hospital's Rheumatology department had never heard of the drug. Despite it being given out for Narcolepsy and in the NHS site for lsyed prescription drugs.

A second tier drug for it is Pregabalin which they lied and cheated me out of so therefore not only do I have a condition I have one that they lie about, that I had to diagnose and that they are refusing second rate drugs for!

So a condition without the proper drugs in other words, just so we are clear for anyone thinking of leaving smart comments, lmao.

Before anyone states anything about mad claims either then I suggest you listen to all I stated by their own admission as I recorded every appointment, meeting and test for the last three years!

http://asaintcalledallnights.blogspot.co.uk

People do not think before they leave comments, they do no consider they might be wrong, do not have enough information and even worse for them whether they end up looking like dick-wads at the end of it and that this will remain on there?!

God, people are so naive and narrow minded and yet so many have high opinions of their own intelligence and wisdom that strays way beyond reality! LMFAO!



Thursday, 8 May 2014

THE MEMORIES OF THE MOTHMAN

DAMN AND FECK IT!!!

LOL!

Moths because I am involved in chasing them about though in all honesty this is the area of two brothers, who I believe we'll take over this particular blog one day but still have my involvement.

Mothman to pay homage to what I think I'd one of the greatest films, as well as one of r the most eerie, I have ever watched in my life! This is of course The Mothman Prophecies starting Richard Gere and Laura Linney and boy did I find her dreamy!! I am never one for watching movies repeatedly and too close together but this one broke the rules!  I shocked a fair few others too by getting them to watch it. The atmosphere and eerie feeling could not have been bought across better by the superb music created by someone, or a group but more likely duo lol, called Tomandandy!

I digress, to pay homage.

Memories because of my own and asking with the eerie feeling I get whenever it plays up, which is a great deal and had become much more frequent recent years.

This should be evident throughout the life of this blog going back right to the beginning and long before? Of course little could I have guessed that this would be a condition let alone being linked to my Plantar fasciitis!! But linked they are!

No this post is all about one simple bag of sugar. Yes you read that correctly I did indeed type a 'a bag of sugar'!

The two most common things sugar is used for is for making tea, and/or coffee, and then cereals. Not eating so much in the way of cereals and I cannot drink coffee anymore, well I could only in the mornings I guess, so it's solely for tea. Both normal and decaffeinated tea.

Now here is the thing to make you bake the grey matter!

Today I came home with four pints of milk as yesterday morning I noticed I was getting low. Yesterday morning. But when I left the house it was one of two items I needed and the other one being sugar which I intended to buy each morning since last Saturday!!

I have left the house to buy sugar for six days and somehow M's snagged to rent ever the milk and still forget the forget the sugar!

So it could be argued that I has age the memory of a Moth and that to have that of a Goldfish would be an improvement at times!

Yesterday I returned inside my house three times and when I got to where I was heading I realised I had still left tree woo items in the house, sorry three and now remembered it was four, no five!!

See what I mean?!

Both phones, tablet PC, camera and back up battery!! No wait? Missing something ... umm two ticks? Ugh! Idiot two phones makes 5, 5 minutes later!!! Lol!

I cannot emphasize enough how frustrating this is! The memory thing, Fibrofog add they refer to it. This is why I used to get so frustrated with GPs as for ten years I would walk out of the surgery and realize I had forgotten something because they rushed me out the door. When I had Doctors tell me they only deal with one thing at a time outer appointment coming from a Doctor this stunned me! Like I said to all that stated this, will if these thinks are linked your never going to diagnose it with that rule and that is a waste of both our times! Also what about prior that do have memory issues? I imagine that a fair percentage of mental health sufferers have memory issues?

Little did I know that I did indeed have a condition that explains my forgetful nature that had been like that for over 15 years at a guess. But then my family members would have an accurate idea of that because I famously forget, or they thought didn't bother, with Birthday and Christmas Cards. I told them it was of because I hate Christmas because due to not seeing my daughter for so long. Which was true but not the real reason as simply telling people you forgot their birthday I see as being potentially hurtful.

So the memory and the sleep issue is a real stumbling block for keeping to any arrangements, new or even on the same bloody date each year! Today I was trying to figure out if it was Tuesday or Wednesday and decided it must be Wednesday. That is until a mattress wife mentioned it was Thursday!!

If it had never occurred to anyone you will find that this blog well show you that I hate appointments and specific times and dates because it's a worry every single day that I will either forget it entirely or not fall asleep til the next morning and wake up without enough time to make it!

So you can imagine me shaking my head when they made the appointment for this condition at 9AM in the morning? Lol!

Yeah right, that's never going to happen! Unless I traveled there the night before and sat in the hospital all night which I would be fully prepared to do. But this would make me cranky and short tempered which would not be a good idea, unless that was what they were going for?! Lol! Then a few sharp comments on the patronizing side would set me off like a rocket while they stand there licking each one of a pile of labels and start whacking them on my forehead when it came into range?!

Lmao!

Nothing would surprise me anymore, nothing. Well until another part down the line stating I was wrong?!